Resources
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Cushing Syndrome
from misdiagnosis to recovery
By Giselle Cortes
Reading Giselle's book was much like reading my own story. If you have been down this path, I highly recommend the read. You are not alone! Doctors are incredibly dismissive of cushing syndrome symptoms because they mimic so many other conditions. This book is a great example of advocating for yourself and not giving up!​
Adrenal Insufficiency United
AIU Mission
Adrenal Insufficiency United (AIU) is dedicated to supporting individuals and caregivers affected by adrenal insufficiency, empowering them with education, resources, community building, and legislative advocacy.​
National Adrenal Diseases Foundation
Secondary Adrenal Insufficiency
Discusses:
Definition
Diagnostic Criteria
Causes
Symptoms
Treatment
Mayo Clinic
Cushing Syndrome
Clinical Overview
Doctors & Departments
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Cushing - Mayo Clinic Overview
*My endocrinologist completed her residency at Mayo Clinic; I highly recommend either traveling to Rochester, Minnesota or finding a doctor with Mayo experience.
Cushing's Support & Research Foundation (CSRF)
Cushing’s syndrome and Cushing’s disease are caused by the excess production of the steroid hormone, cortisol. These relatively rare disorders can be physically and emotionally devastating to the patient. Most patients endure years of symptoms prior to obtaining a diagnosis and recovery often requires a substantial period of time. Patients can gain insight and support through conversations with other patients. Two major objectives of the CSRF are to put patients in contact with other patients and to facilitate the sharing of information between members. These are partially accomplished through the CSRF newsletter and the CSRF website.
National Organization for Rare Diseases (NORD)
Resources for Cushing Syndrome
Cushing syndrome is a rare endocrine disorder, characterized by a variety of symptoms and physical abnormalities that occur as a result of excessive amounts of the hormone cortisol, a vital glucocorticoid.
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