Quick Reminder: ECS = Endogenous Cushing Syndrome (my initial diagnosis) SAI = Secondary Adrenal Insufficiency (my postoperative diagnosis) So, what is my plan for recovery? First, I'll start with what the current prescribed treatment process looks like. ECS treatment is very straight forward - surgery (adrenalectomy and tumor removal). On April 21, 2025, I had my surgery while my sister and brother-in-law so generously flew out so my husband could stay with me in the hospi

Long Post Warning! :) I tried to condense it, but it was a several-day stay and LOTS to share. I wish I could say that my experiences are unique, but unfortunately, my experiences seem to be the rule, not the exception. I am in a Facebook group for adrenal insufficiency support (15k+ members). In this group, the posts are about one of two things - advice when symptoms arise (to go to the hospital, to stress dose, etc.) or they are emergency department horror stories. I'll pr

Following my surgery (the adrenalectomy and tumor removal), Secondary Adrenal Insufficiency is almost always present (particularly the longer Cushing Syndrome went on undiagnosed, me 10+ years...). Endocrinologist 1 did not diagnose this - again, more to come when the time is appropriate. But in July 2025, I was diagnosed postoperatively with SAI. And because I was underdosed April - July, I was also diagnosed at the time with Severe Glucocorticoid Withdrawal Syndrome. Bas